Managing Chronicity in Unequal States Ethnographic perspectives on caring
Managing Chronicity in Unequal States investigates how people live with chronic conditions in different contexts around the world, where judgements on human worth have long-lasting effects on people's wellbeing
| Other Authors: | , |
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| Format: | eBook |
| Language: | English |
| Published: |
London
UCL Press
2021, 2021
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| Series: | Embodying inequalities
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| Subjects: | |
| Online Access: | |
| Collection: | JSTOR Open Access Books - Collection details see MPG.ReNa |
Table of Contents:
- Conclusion
- Notes
- References
- 2 (Un)Deservingness and disregard: Chronicity, hospice and possibilities for care on the American periphery
- Deserving and undeserving of care
- (Un)Deservingness, attention and disregard
- Shaping a landscape of care through disregard
- Disregarded costs and the disappearance of medical equipment
- Claims to deservingness and bureaucratic mechanisms of disregard
- Durable medical equipment 'within reach'
- Snowbirds
- 'The only way to be heard': Inaudibility and absent complaints
- Ms Donovan
- Conclusion
- Notes
- References
- 3 Publicly privatised: Relative care support and the neoliberal reform in Finland
- Introduction
- Two facets of privatisation in the care system
- Relative caregivers in Archipelago Town and municipal support
- Families, relatives and caregiving practices in Archipelago Town
- Struggling with closed doors
- The professionalism of relative care
- The difference between relative caregivers and care workers
- Conclusion
- Notes
- References
- 4 The 'hassle' of 'good' care in dementia: Negotiating relatedness in the navigation of bureaucratic systems of support
- Introduction
- (In)dependence in Dar es Salaam: Daudi's self-care, care for and care about others
- Conclusion
- Note
- References
- 6 Alcoholism and evangelical healing in Indigenous Mexico: Chronicity and care at the margins of the state
- From comorbidity to syndemics of alcoholism and marginality
- Five centuries of alcoholisation
- Drinking at the margins
- Care for whom? Drinking patterns and the possibility of care
- Medical (un)care: Governmental health providers
- Evangelicals and alcohol: Healing within the community
- Conclusions
- Acknowledgements
- Notes
- References
- Cover
- Half Title
- Series Information
- Title Page
- Copyright Page
- Contents
- List of contributors
- Foreword
- References
- Acknowledgements
- Introduction
- Defining and defying chronicity
- Care and the politics of deservingness
- Structure of the book
- Concluding remarks
- Notes
- References
- 1 A house of cards: Chronicity, care packages and a 'good life'
- Background
- Methods
- Theoretical framework: Temporality, ethics and care
- Clarissa's struggle and the house of cards
- Temporal/spatial reconfiguration: a discussion
- Relationality: a discussion
- 'Official' paperwork
- The fuss and trust of relatedness
- 'Getting it all sorted': (Mis)adventures in bureaucratic hassle
- The state as a bad relative
- Conclusion
- References
- 5 Assemblages of care around albinism: Kin-based networks and (in)dependence in contemporary Tanzania
- Introduction
- Multiple assemblages of care around people with albinism
- The reduction of institutional care and the 'NGOisation' of the nation state
- Kin-based care and humanitarian discourses in Ilula: Florentina's experiences