Managing Chronicity in Unequal States Ethnographic perspectives on caring

Managing Chronicity in Unequal States investigates how people live with chronic conditions in different contexts around the world, where judgements on human worth have long-lasting effects on people's wellbeing

Bibliographic Details
Other Authors: Montesi, Laura (Editor), Calestani, Melania (Editor)
Format: eBook
Language:English
Published: London UCL Press 2021, 2021
Series:Embodying inequalities
Subjects:
Online Access:
Collection: JSTOR Open Access Books - Collection details see MPG.ReNa
LEADER 04666nam a2200517 u 4500
001 EB002055670
003 EBX01000000000000001199336
005 00000000000000.0
007 tu|||||||||||||||||||||
008 220823 r ||| eng
020 |z 9781800080294 
020 |a 9781800080294 
020 |z 1800080301 
020 |a 1800080301 
020 |z 9781800080300 
020 |a 9781800080300 
020 |a 1800080328 
020 |z 1800080298 
020 |a 1800080298 
050 4 |a RA418 
050 4 |a RA644.5 
100 1 |a Montesi, Laura  |e [editor] 
245 0 0 |a Managing Chronicity in Unequal States  |h Elektronische Ressource  |b Ethnographic perspectives on caring  |c edited by Laura Montesi and Melania Calestani 
260 |a London  |b UCL Press  |c 2021, 2021 
300 |a 248 pages 
505 0 |a Conclusion -- Notes -- References -- 2 (Un)Deservingness and disregard: Chronicity, hospice and possibilities for care on the American periphery -- Deserving and undeserving of care -- (Un)Deservingness, attention and disregard -- Shaping a landscape of care through disregard -- Disregarded costs and the disappearance of medical equipment -- Claims to deservingness and bureaucratic mechanisms of disregard -- Durable medical equipment 'within reach' -- Snowbirds -- 'The only way to be heard': Inaudibility and absent complaints -- Ms Donovan -- Conclusion -- Notes -- References 
505 0 |a 3 Publicly privatised: Relative care support and the neoliberal reform in Finland -- Introduction -- Two facets of privatisation in the care system -- Relative caregivers in Archipelago Town and municipal support -- Families, relatives and caregiving practices in Archipelago Town -- Struggling with closed doors -- The professionalism of relative care -- The difference between relative caregivers and care workers -- Conclusion -- Notes -- References -- 4 The 'hassle' of 'good' care in dementia: Negotiating relatedness in the navigation of bureaucratic systems of support -- Introduction 
505 0 |a (In)dependence in Dar es Salaam: Daudi's self-care, care for and care about others -- Conclusion -- Note -- References -- 6 Alcoholism and evangelical healing in Indigenous Mexico: Chronicity and care at the margins of the state -- From comorbidity to syndemics of alcoholism and marginality -- Five centuries of alcoholisation -- Drinking at the margins -- Care for whom? Drinking patterns and the possibility of care -- Medical (un)care: Governmental health providers -- Evangelicals and alcohol: Healing within the community -- Conclusions -- Acknowledgements -- Notes -- References 
505 0 |a Cover -- Half Title -- Series Information -- Title Page -- Copyright Page -- Contents -- List of contributors -- Foreword -- References -- Acknowledgements -- Introduction -- Defining and defying chronicity -- Care and the politics of deservingness -- Structure of the book -- Concluding remarks -- Notes -- References -- 1 A house of cards: Chronicity, care packages and a 'good life' -- Background -- Methods -- Theoretical framework: Temporality, ethics and care -- Clarissa's struggle and the house of cards -- Temporal/spatial reconfiguration: a discussion -- Relationality: a discussion 
505 0 |a 'Official' paperwork -- The fuss and trust of relatedness -- 'Getting it all sorted': (Mis)adventures in bureaucratic hassle -- The state as a bad relative -- Conclusion -- References -- 5 Assemblages of care around albinism: Kin-based networks and (in)dependence in contemporary Tanzania -- Introduction -- Multiple assemblages of care around people with albinism -- The reduction of institutional care and the 'NGOisation' of the nation state -- Kin-based care and humanitarian discourses in Ilula: Florentina's experiences 
653 |a SOCIAL SCIENCE / Anthropology / Physical 
653 |a Chronically ill / Social conditions 
700 1 |a Calestani, Melania  |e [editor] 
041 0 7 |a eng  |2 ISO 639-2 
989 |b ZDB-39-JOA  |a JSTOR Open Access Books 
490 0 |a Embodying inequalities 
500 |a 7 When 'care' leads to 'chronicity': Exploring the changing contours of care of homeless people living on the streets in India 
015 |a GBC1F4928 
776 |z 9781800080287 
776 |z 9781800080324 
776 |z 180008028X 
776 |z 9781800080317 
776 |z 180008031X 
856 4 0 |u https://www.jstor.org/stable/10.2307/j.ctv1nnwhmv  |x Verlag  |3 Volltext 
082 0 |a 362.1 
520 |a Managing Chronicity in Unequal States investigates how people live with chronic conditions in different contexts around the world, where judgements on human worth have long-lasting effects on people's wellbeing