Community centered family health history collaboration across communities : how do you make research community-specific and universally-relevant?

Evaluation of family health history represents a first step in identifying genetic contributors to health and can serve as an important basis for improving healthcare and encouraging a healthy lifestyle. Though family health history tools abound, neither the premise that they will make a difference...

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Bibliographic Details
Main Author: Edelson, Vaughn
Corporate Author: Genetic Alliance
Format: eBook
Language:English
Published: Washington, DC Genetic Alliance 2010, c2010
Series:Genetic Alliance monograph series
Subjects:
Online Access:
Collection: National Center for Biotechnology Information - Collection details see MPG.ReNa
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520 |a Evaluation of family health history represents a first step in identifying genetic contributors to health and can serve as an important basis for improving healthcare and encouraging a healthy lifestyle. Though family health history tools abound, neither the premise that they will make a difference in health outcomes nor the analysis of their usefulness along a medical-nonmedical continuum has been validated in a systematic, evidence-based study as measured by changed behavior leading to better personal health. The fundamental purpose of this project was to create and evaluate a customizable, nonmedical family health history toolkit (Does It Run In the Family?), informed by oral history and folklore traditions