Genetic Alliance

Genetic Alliance is a nonprofit organization, founded in 1986 by Joan O. Weiss, working with Victor A. McKusick, to advocate for health benefits in the accelerating field of genomic research. This organization is a network of over 1,000 disease advocacy organizations, universities, government organizations, private companies, and public policy organizations. They aim to advance genetic research agendas toward health benefit by engaging a broad range of stakeholders, including healthcare providers, researchers, industry professionals, public policy leaders, as well as individuals, families and communities. They create programs using a collaborative approach, and aim to increase efficiency and reduce obstacles in genetic research, while ensuring that voices from the involved disease communities are heard. They also promote public policies to advance healthcare. Genetic Alliance provides technical support and informational resources to guide disease-specific advocacy organizations in being their own research advocates. They also maintain a biobank as a central storage facility for several organizations who otherwise would not have the infrastructure to maintain their own repository. Provided by Wikipedia

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by Byrne, Jayne
Published 2008
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Published 2006
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by Exe, Nicole
Published 2006
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by Exe, Nicole
Published 2006
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Published 2010
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Published 2006
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Published 2006
La Alianza Genética
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Published 2006
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Published 2006
La Alianza Genética
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by Byrne, Jayne
Published 2008
Genetic Alliance
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Published 2010
Genetic Alliance
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Published 2010
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Published 2011
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Published 2012
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Published 2011
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Published 2010
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Published 2012
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Published 2010
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Published 2013
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