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|a 9780309704892
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|a 0309704898
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|a Stone, Celeste
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|a Considerations for returning individual genomic results from population-based surveys
|h Elektronische Ressource
|b focus on the National Health and Nutrition Examination Survey : proceedings of a workshop
|c Celeste Stone, rapporteur ; National Academies of Sciences, Engineering, and Medicine; Division of Behavioral and Social Sciences and Education; Committee on National Statistics
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|a Washington, DC
|b National Academies Press
|c 2023, 2023
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|a 1 PDF file (xix, 187 pages)
|b illustrations, maps
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|a National Academies of Sciences, Engineering, and Medicine (U.S.)
|b Committee on National Statistics
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|a Workshop on Considerations for Returning Individual Genomic Results from Population-Based Surveys: Focus on the National Health and Nutrition Examination Survey (2022, Online)
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|a eng
|2 ISO 639-2
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|b NCBI
|a National Center for Biotechnology Information
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|u https://www.ncbi.nlm.nih.gov/books/NBK596495
|3 Volltext
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|a Population surveys collect information from participants by asking questions. Today, many surveys also collect biologic specimens that can be used to analyze a respondents DNA and other biomarkers. The National Health and Nutrition Examination Survey (NHANES) is a population survey that also administers a physical examination, collects biospecimens, and reports some test results (e.g., cholesterol levels) to the participant. While visiting communities large and small throughout the country, NHANES collects health and nutrition data from a representative sample of individuals through in-person interviews and health examinations that take place at special mobile examination centers. The examination component consists of medical, dental, and physiological examinations, as well as laboratory tests. On December 2, 7, and 8, 2022, a workshop was convened to focus on anticipated future collections of genomic data by NHANES. The 2022 workshop explored ethical considerations and current practices for returning genomic information from active research and population surveys. This Proceedings of a Workshop summarizes the presentations and discussions at the workshop
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