Patient-or participant-generated registries addendum to registries for evaluating patient outcomes : a user's guide

Patient registries can provide important, real-world evidence to inform health decisions made by patients, consumers, providers, as well as regulatory agencies and payers. Many patient registries are sponsored by professional associations, academic institutions, healthcare organizations, or pharmace...

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Bibliographic Details
Main Authors: Terry, Sharon, Runkle, Deborah (Author), Wicks, Paul (Author)
Corporate Authors: United States Agency for Healthcare Research and Quality, L&M Policy Research
Format: eBook
Published: Rockville, MD Agency for Healthcare Research and Quality 2018, February 2018
Edition:Third edition
Series:Research white paper
Online Access:
Collection: National Center for Biotechnology Information - Collection details see MPG.ReNa
Table of Contents:
  • Includes bibliographical references