The New Genetics: From Research into Health Care Social and Ethical Implications for Users and Providers

ciples and recommendations on genetic service provision in a multidisciplinary way. At the workshop the main issues and principles that are presently emerging as integral parts of national and international recommendations on genetic service provision such as: - voluntary provision of services - pro...

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Bibliographic Details
Other Authors: Nippert, Irmgard (Editor), Neitzel, Heidemarie (Editor), Wolff, Gerhard (Editor)
Format: eBook
Language:English
Published: Berlin, Heidelberg Springer Berlin Heidelberg 1999, 1999
Edition:1st ed. 1999
Subjects:
Online Access:
Collection: Springer Book Archives -2004 - Collection details see MPG.ReNa
Table of Contents:
  • Introduction: The New Genetics: Social and EthicalFrom Research into Health Care — Implications for Users and Providers.
  • Opening Address
  • Session I: The Provision of the New Genetics: In Whose Best Interest?
  • Americans’ Attitudes toward Informed Consent for Breast Cancer Susceptibility Testing: Questions for Cross-Cultural Research
  • Nondirectiveness — Facts, Fiction, and Future Prospects
  • Predictive Genetic Tests: Destiny or Danger?
  • Session II: Providing the New Genetics in Primary Care: Problems and Perspectives
  • Genetic Services in Europe — Primary Care Genetics Is a Priority for Health Care Systems
  • Education in Genetics
  • Genesis, Compulsions, Acceptability, and Future of Pre-Natal Sex-Selection in India
  • Session III: Can the Implementation of New Genetic Tests Be Safeguarded by Consensus Policy Recommendations?
  • Ethics and Genetics in International Perspective: Results of a Survey
  • Consensus and Variation among Medical Geneticists and Patients on the Provision of the New Genetics in Germany — Data from the 1994-1996 Survey among Medical Geneticists and Patients
  • The Case for Proposed International Guidelines on Ethical Issues in Medical Genetics
  • Session IV: Critiques on the Provision of the New Genetics: Pros and Cons from Consumer and Provider Perspectives
  • Statement on CF-Heterozygote Testing
  • The Patients’ Perspective on the Provision of Genetic Testing
  • The European Alliance of Genetic Support Groups, Their Ethical Code and the Provision of Genetic Services
  • What Could a Balance Look Like between Individual Autonomy and Society’s Need to Regulate?
  • New Genetics, New Ethics?
  • Guidelines on Ethical Issues in Medical Genetics and the Provision of Genetic Services