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||| eng |
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|a 9789047411710
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| 100 |
1 |
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|a Knoppers, Bartha Maria
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| 245 |
0 |
0 |
|a Genomics and public health
|h Elektronische Ressource
|b legal and socio-ethical perspectives
|c edited by Bartha Maria Knoppers
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| 260 |
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|a Boston
|b Martinus Nijhoff
|c 2007, 2006
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| 300 |
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|a xi, 329 p.
|b ill.
|c 25 cm
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| 505 |
0 |
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|a current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M.
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| 505 |
0 |
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|a of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics - the public health perspective on genome-based knowledge and technologies / Angela Brand --
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| 505 |
0 |
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|a issues, realities and possibilities. Introduction : expansion of screening / J.
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| 505 |
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|a current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet ... [et al.] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin
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| 505 |
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|a Includes bibliographical references
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| 653 |
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|a Dépistage génétique / Droit
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| 653 |
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|a Genetic screening / Law and legislation
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| 653 |
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|a Genomics
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| 653 |
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|a Genomics / Moral and ethical aspects
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| 653 |
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|a Genomics / ethics
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| 653 |
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|a Génomique
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| 653 |
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|a Génomique / Aspect moral
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| 653 |
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|a Human Rights
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| 653 |
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|a Mass Screening
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| 653 |
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|a Public Health / ethics
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| 653 |
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|a Public health
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| 653 |
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|a Santé publique
|
| 041 |
0 |
7 |
|a eng
|2 ISO 639-2
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| 989 |
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|b ZDB-1-BEC
|a Brill Nijhoff E-Books Collections 2006-2008
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| 490 |
0 |
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|a Nijhoff eBook titles 2007
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| 856 |
4 |
0 |
|u http://dx.doi.org/10.1163/ej.9789004155596.i-329?nosfx=y
|x Verlag
|3 Volltext
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| 082 |
0 |
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|a 576.5
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