1

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3 “... to translational science in important ways. Experts agree that these registries are transforming patient/caregiver...”

4 “... to translational science in important ways. Experts agree that these registries are transforming patient/caregiver...”

5 “... with the Scientific Resource Center at the Oregon Health and Science University. The KQs are as follows: KQ 1...”

6 “... with the Scientific Resource Center at the Oregon Health and Science University. The KQs are as follows: KQ 1...”

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12 “..., Cochrane Library, Web of Science, Clinicaltrials.gov, the FDA Premarket Approval database, and unpublished...”

13 “..., Cochrane Library, Web of Science, Clinicaltrials.gov, the FDA Premarket Approval database, and unpublished...”

14