Ethics, Law and Governance of Biobanking National, European and International Approaches

Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the  borders between medica...

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Main Author: Mascalzoni, Deborah
Corporate Author: SpringerLink (Online service)
Format: eBook
Published: Dordrecht Springer Netherlands 2015, 2015
Series:The International Library of Ethics, Law and Technology
Online Access:
Collection: Springer eBooks 2005- - Collection details see MPG.ReNa
Table of Contents:
  • a definition; Barbara Parodi
  • A participatory space beyond the "autonomy versus property" dichotomy; Mariachiara Tallacchini
  • Intellectual Property and Biobanks; Naomi Hawkins
  • Consent, Privacy and Property in the Italian Biobanks Regulation: A Hybrid Model within EU?; Matteo Macilotti, Simone Penasa, Marta Tomasi
  • Data Protection Principles and Research in the Biobanks Age; Roberto Lattanzi
  • The New General Data Protection Regulation – where are we are and where might we be heading?; Jane Reichel and Anna-Sara Lind
  • The Tension between Data Sharing and the Protection of Privacy in Genomics Research; Jane Kaye
  • Incidental findings: the time is not yet ripe for a policy for biobanks; Jennifer Viberg, Mats G. Hansson, Sophie Langenskiöld, Pär Segerdahl
  • Biobanking across borders: the challenges of harmonization; Ruth Chadwick, Heather Strange
  • Governing Biobanks Through A European Infrastructure; Emmanuelle Rial-Sebba